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Feature
Do you want to take your child to a park where every attraction is designed for children with special needs? Check out our piece on a new park in Texas called Morgan's Wonderland. And for those of you who attempted to guess the location of the "This Restroom Contains an Adult Size Changing Table" sign on our Facebook page, it is at Morgan's Wonderland!
Perspectives
Our Perspectives section includes a piece on viewing the positive aspects of disability, as well as an homage to Dan, a man who has since passed but taught many important lessons.
Focus: Preparing for and Surviving the Death of a Child
This month we bring a set of articles that span all phases of living--and dying--with a child who has a life-shortening or life-threatening condition. We begin with an article on the comprehensive and holistic Palliative Care model by Scott Millard, . Next, Jamie Barnes describes Supportive Care and Therapeutic Support Plans, including DNRs, through her son Hayden's story in . Deb Millard's piece explores the spectrum of grief that spans from diagnosis to after death in . Finally, Ellen Gray teaches us how to celebrate the memory of a child, through her poignant essay .
This month we bring a set of articles that span all phases of living--and dying--with a child who has a life-shortening or life-threatening condition. We begin with an article on the comprehensive and holistic Palliative Care
- An
Introduction to Pediatric Palliative Care
- Living Your Best While Preparing for the Worst
- A Process of Grief: The Reality of Grieving a Child with Complex Health Care Needs
- Remembering Sebastian with Joy:
Rituals of Remembrance
Specialty Article
Respiratory
Many children with complex medical needs struggle with ongoing respiratory problems that may become very serious during illnesses. This article outlines the importance of developing a respiratory routine, and describes some of the common elements that can be used to prevent and treat respiratory issues.
Respiratory
Many children with complex medical needs struggle with ongoing respiratory problems that may become very serious during illnesses. This article outlines the importance of developing a respiratory routine, and describes some of the common elements that can be used to prevent and treat respiratory issues.
Feature
Do you want to take your child to a park where every attraction is designed for children with special needs? Check out our piece on a new park in Texas called Morgan's Wonderland. And for those of you who attempted to guess the location of the "This Restroom Contains an Adult Size Changing Table" sign on our Facebook page, it is at Morgan's Wonderland!
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